About National Organization for Rare Disorders
The National Organization for Rare Disorders (NORD) is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
NORD's research grant program began in 1989 at the request of parents and patients. There are nearly 7,000 diseases classified as rare in the United States according to the National Institutes of Health (NIH), and only about 200 of these have treatments. Furthermore, many rare diseases are not even being studied by researchers at this time, and the research that is underway is often funded by parents and patient organizations.
For more information visit: www.rarediseases.org
MBF Supports NORD
Announcements:
August, 2011
MBF establishes the MBF Pediatric Rare Disease Research Fund at the National Organization for Rare Disorders to raise funds for pediatric rare disease research as well as further awareness for pediatric rare disorders.
December, 2010
MBF establishes the MBF Pediatric Rare Disease Research Fund at the National Organization for Rare Disorders to raise funds for pediatric rare disease research as well as further awareness for pediatric rare disorders.